MDA Stride & Ride PICS

Yesterday was hard. I thought I would be fine and I guess i didn't really think about it too much. We got there and were told where to go for registration. That part was okay, it took a few minutes registering all the kids. We then walked over to our team's table to get our shirts and badges. Then I actually looked around.

Wham!

Reality set in AGAIN. My son has Duchenne Muscular Dystrophy. Wow. My son will experience the same things as these boys. Power wheelchairs. Not regular wheelchairs...power ones. Their arms aren't strong enough to get them around. The heartbreaking thing I saw was the team that was walking in honor of their loved one who died.

While it was tough, I am so glad I went. I saw a group of people come together for a purpose. That purpose is to help these boys (and girls) by raising awareness and raising funds for research. Out of the 120ish people that were there, more than $12,000 was raised and contributed to the MDA.

God's grace is sufficient. I am trusting in Him. I know that He will not fail me. In whatever may come, He will still be God and he will guide us through this journey.

MDA Stride & Ride

Getting ready to leave for guitar class

This weekend, we will be participating in our first MDA event. It is the Stride & Ride and it is a fundraiser/awareness-raiser for the many different forms of Muscular Dystrophy. I am looking forward to it for several reasons. One, we will see a family that we have known for a little while and it is nice catching up. Two, we will meet many other families who are dealing with the same issues as we are, and they will be local families. I have really enjoyed getting to "meet" other DMD moms via Facebook but it is also nice to meet people in person too.

Right now, I am in one of the "up" moments with DMD. The ups and downs keep coming and going. Since the beginning of April, our family has been insanely busy, thus the reason for my lack of posts. I will try better to keep current! There really hasn't been a whole lot to report though, which I suppose is a good thing. He is running, peddling, learning to play the guitar, doing his schoolwork, just like a normal 6 year old boy. Sometimes it is easy to forget that he has it. I like forgetting. I am not looking forward to the day that it is in my face (as Misty would say!!) all the time. I am not in denial, just enjoying our time.

During our Mission's Conference, we had one of our missionary families at our house and the wife, who is now my friend :o) wisely told me that his abilities aren't going to all of a sudden stop, they will be gradually slowing and we should be preparing for that in regards to our home and making it wheelchair friendly. Wow, that hit me like a ton of bricks. But she's right. That's exactly what will happen. He won't go from completely walking to completely needing a wheelchair to get around. He will gradually have to use a wheelchair more and more, so we need to prepare for when the gradual need arises. Does that make sense? I am probably rambling...it is late, but it makes sense to me.

I will absolutely post pics of the Stride and Ride event this weekend! Hope you all have a great weekend ;o)