Here is a website that has been created to raise awareness and funds for Duchenne Muscular Dystrophy.
www.jettfoundation.org
Also, a video they put out that really puts real-life perspective on this horrid disease.
Wednesday, March 24, 2010
Saturday, March 20, 2010
Peddling ;o)
My son rode a tricycle for the first time today!
He has never been able to peddle and since our DMD diagnosis, I never thought he could. He sure proved me wrong today when he spied a friends tricycle and got on. It was a blessing to see!
He has never been able to peddle and since our DMD diagnosis, I never thought he could. He sure proved me wrong today when he spied a friends tricycle and got on. It was a blessing to see!
Wednesday, March 3, 2010
Tuesday, March 2, 2010
Recent News Articles
There are two recent news articles that seem to me to be very promising in the area of research for different forms of Muscular Dystrophy. I am excited about these because it means there could be a cure for my son in the near future.
I have to say that the Lord has been so good to me. When we first got the news of a possible diagnosis for Duchenne, I was absolutely crushed! I mean, who wouldn't be?! It is a horrible disease that robs these precious boys from having a 'normal' life, a life that includes growing up, walking properly, running, climbing trees, doing stuff that boys do! It robs them of a chance to grow up, get married, have children of their own. When the news came, I could literally see our life flash before me and wondered if he will be at all his siblings weddings, be an uncle to his future nieces and nephews, be a married man, a father, a preacher like his daddy, a missionary...
The Lord picked me up and let me know that nothing happened by an accident. He let me know that He will be with me every step of the way.
I have to say that the Lord has been so good to me. When we first got the news of a possible diagnosis for Duchenne, I was absolutely crushed! I mean, who wouldn't be?! It is a horrible disease that robs these precious boys from having a 'normal' life, a life that includes growing up, walking properly, running, climbing trees, doing stuff that boys do! It robs them of a chance to grow up, get married, have children of their own. When the news came, I could literally see our life flash before me and wondered if he will be at all his siblings weddings, be an uncle to his future nieces and nephews, be a married man, a father, a preacher like his daddy, a missionary...
The Lord picked me up and let me know that nothing happened by an accident. He let me know that He will be with me every step of the way.
Monday, March 1, 2010
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