Positive

Ben's test came back today and yes, it is positive. He was officially diagnosed with Duchenne Muscular Dystrophy.

We debated back and forth about whether or not to take all the kids to the appointment. We decided at the last minute to just all go together. We are a family, we'll just deal with it as a family. When we walked into the clinic, there was noone else there; it almost looked like they were only open for us lol. I went to the receptionist desk and told her who we were and who we were supposed to see. The doctor was standing right there and said, "Are these all your children? Did you mean to bring them?" Um, no it was an accident. She said well, we are discussing the results of the test and you can bring them in if you want or they can stay in the waiting area. Right then, I *knew*-she pretty much let it out that the results were bad by the way she said that.

Since we had already prepared ourselves (as much as we could), we weren't too surprised when she said that yes, he did in fact have Duchenne MD. Still with all the information she gave us, it was a little overwhelming.

Praise the Lord that I know Him. Otherwise, I would be a mess right about now. The Lord has given me a calmness and peace about this and I know that He is holding me close. We are beginning a new chapter in this journey-a chapter that will include MDA clinics, cardiologists, respitory therapists, physical therapists,etc... However, with all these new doctors and appointments, we are going to try to live life as normally as possible. We are still going to do school, church, field trips, but will make more of an effort to stop and smell the roses. We want to enjoy life as much as possible and live it up to the fullest.

I will post more about the things discussed at our appointment today in another post soon. Thank you to all who are praying for our family.