Vitamins

I am overwhelmed with all the information out there for DMD! There are some very encouraging things going on in the DMD community. I have signed up at the MDA website and everyone is very welcoming and understanding.

There are some specific prayer requests that we have right now.

#1 I have read about several vitamins and supplements that could be beneficial to Ben. These include CoQ10, Vitamin E, Selenium, as well as a few others. There have not been high dollar medical studies to prove these though. I want to be able to give him the very best possible chance at living a full life. Please pray for our wisdom in decided which vitamins/supplements work best for his situation.

#2 That we are able to obtain his new medicine without problems. Many doctors prescribe Prednisone (long term) for MD and there are MANY side effects. There is another steroid that works just as well, Deflazacort, without many of the side effects, but it is not FDA approved and therefore has to be purchased in Canada, Mexico, or the UK. We will be getting ours in the UK. Pray that our first order goes through ok and that we get it in time (his doctor wants him to have been on it for at least 2 weeks before our first MDA clinic appointment (February 10).

All in all, we are doing okay. We have pretty much have had a month preparing for the official news. I want to be positive and stay as upbeat as possible. I think this will benefit us and all of our children. God's grace is sufficient! Hebrews 4:16 tells us "Let us therefore come boldly unto the throne of grace, that we may obtain mercy, and find grace to help in time of need." This is what I am doing, going to the throne and finding the grace in this time of need.